Breast Health Navigator Resources
Key Web Sites and Online Newsletters
General Cancer Information
American Cancer Society
www.cancer.org
The American Cancer Society Web site is a key location for reliable information on cancer. It includes yearly cancer statistics, breast cancer treatment guidelines, and complementary and alternative treatments as they relate to cancer.
National Comprehensive Cancer Network (NCCN)
www.nccn.org
The NCCN Breast Cancer Treatment Guidelines is the recognized standard of reference for treating breast cancer. This publication is updated every year. You can download this guide online and order booklets for your patients.
CA: A Cancer Journal for Clinicians
http://caonline.amcancersoc.org
CA: A Cancer Journal for Clinicians is a peer-reviewed journal of the American Cancer Society providing cancer care professionals with up-to-date information on all aspects of cancer diagnosis, treatment, and prevention. Sign up for a free online or print subscription.
Imaginis
www.imaginis.com
Excellent Web site providing education and the latest news in breast cancer for professionals and patients. Sign up for free online newsletter to receive concise summaries on the latest news and information on breast cancer.
www.BreastCancer.net
BreastCancer.net is an online newsletter which provides the latest findings from publications and media sources. An excellent resource for staying current. Subscriptions are $20 per year after a free trial.
Breast Cancer Foundations/Grants
Susan G. Komen for the Curewww.komen.org
To date, Susan G. Komen for the Cure has invested $1 billion for research, education and health services. Contact your local affiliate for information on grants that your facility may qualify for.
Professional Associations and Trainings
National Consortium of Breast Centers
www.breastcare.org
The focus of this association is the development, implementation, and expansion of breast center programs by providing professionals with the most up-to-date breast care techniques and options available to their patients. There is a fee to join. The NCBC has an annual meeting in Las Vegas.
The American Society of Breast Surgeons
www.breastsurgeons.org
The focus of this association is to encourage the study of breast surgeons; to promote research and development of advanced surgery techniques; to improve standards of practice for breast surgery in the United States; and to serve as a forum for the exchange of ideas. The ASBS has an annual meeting each spring.
Mammography Education, Inc.
www.mammographyed.com
Instructor Laszlo Tabar, MD, offers training on the diagnosis and treatment of breast disease. The Advanced Diagnostic and Screening training is an excellent course for physicians.
Genetic Testing for Breast Cancer
Myriad Genetics Inc.
www.myriad.com
320 Wakara Way
Salt Lake City, UT 84108
801-584-3600
Myriad Genetics is a leader in cancer predisposition testing. Myriad discovered the BRCA1 and BRCA2 genes that cause hereditary breast and ovarian cancer, and they offer clinical tests to determine a person's predisposition to cancer.
Hormones
The Hormone Foundation
www.hormone.org
8401 Connecticut Avenue, Suite 900
Chevy Chase, MD 20815
800-HORMONE
The Hormone Foundation is a nonprofit organization established by The Endocrine Society. Its mission is to serve as a resource for the public by promoting the prevention, treatment, and cure of hormone-related conditions. This Web site offers excellent downloads for patient education.
The North American Menopause Society (NAMS)
www.menopause.org
5900 Landerbrook Drive, Suite 195
Mayfield Heights, OH 44124
The North American Menopause Society is a nonprofit organization of medical professionals dedicated to promoting women's health and quality of life through an understanding of menopause. This organization publishes the Menopause Guidebook, a booklet providing information on perimenopause, early menopause, menopause symptoms, long-term effects of estrogen loss, and a wide variety of therapies to enhance health.
Genova Diagnostics
www.GenovaDiagnostics.com
800-522-4762
Genova Diagnostics (formerly Great Smokies Diagnostic Laboratory) provides testing in digestive, immune, nutritional, endocrine (estrogen, progesterone, testosterone), and metabolic functioning. Great hormonal educational presentations for nurses.
Breast Exam Training/Education Resources
MammaCare
www.mammacare.com
930 NW 8th Avenue
Gainesville, FL 32601
800-626-2273
The MammaCare method of breast exam is known to be the most thorough, systematic, and efficient method of examining breast tissue.
Breast Self-Exam Slide Presentation/EduCare
www.breasthealthcare.com
3294 Ashley Phosphate Road, Suite 1-A
N. Charleston, SC 29418
800-849-9271 or 843-760-6064
EduCare's PowerPoint slide presentation, Breast Self-Exam, is an excellent resource for the Navigator to use for community education. Topics include: Breast Anatomy, Normal Nodularity, MammaCare BSE, Visual Exam, Clinical Exam, and Mammography Tips.
Brochures/EduCare
www.breasthealthcare.com
3294 Ashley Phosphate Road, Suite 1-A
N. Charleston, SC 29418
800-849-9271 or 843-760-6064
Topics Include: The Art of Breast Self-Exam (MammaCare Method), Breast Self-Exam After Surgery, and Exercise & Care of the Surgical Arm and many others.
Lymphedema
National Lymphedema Network
www.lymphnet.org
The National Lymphedema Network is a nonprofit organization providing education and guidance to patients and healthcare providers on the prevention and management of secondary lymphedema.
Peninsula Medical, Inc.
www.lymphedema.com
800-293-3362
Peninsula Medical sells products for lymphedema patients. Call to order free lymphedema bands for patients.
Bellisse
www.bellisse.com
P.O. Box 2221
Williston, VT 05495
877-273-1683
Bellisse has a compression bra for women with chest and breast lymphedema. Call or go online to order the "Healthcare Provider Kit. This kit is free of charge and includes a sample bra and fitting instructions.
The Lebed Method, Focus on Healing
www.lebedmethod.com
14418 47th Place West
Lynnwood, WA 98087
877-365-6014
The Lebed Method is a therapeutic, medically based and published exercise and movement program to help with balance (both physical and emotional), frozen shoulder, range of motion, Lymphedema, neck and back issues, flexibility, strengthening and much more.
Klose Training & Consulting LLC
www.klosetraining.com
110 Highway 35
Red Bank, NJ 07701
866-621-7888
Lymphedema training school for physical therapists, occupational therapists, and massage therapists.
Academy of Lymphatic Studies
www.acols.com
11632 High Street, Suite A
Sebastian, FL 32958
772-589-3355
Lymphedema training school for physical therapists, occupational therapists, and massage therapists.
Lauren's Hope
www.laurenshope.com
Provides a variety of medical ID bracelets that combine safety with style.
Clinical Trials
NIH Cancer Trials
www.nci.nih.gov/clinicaltrials
National Cancer Institute directory of clinical trials across the country.
www.centerwatch.com
You can use this site to find a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA. This site is designed to be an open resource for patients interested in participating in clinical trials and for research professionals.
Navigator Resources
COPE Library: Breast Health Edition
www.breasthealthcare.com
3294 Ashley Phosphate Road, Suite 1-A
N. Charleston, SC 29418
800-849-9271 or 843-760-6064
Web-based library of 427 breast health topics in 22 categories provides the Navigator with comprehensive breast education for patient education. Easily provide patients with information about procedures, treatments, side effects and more. Each topic is customized with your facility's contact information.
www.oncologyinteractive.com
877-505-6437
This company offers an interactive software program for patient education titled Understanding Breast Cancer. Price starts at $238 for a multi-user license.
www.adjuvantonline.com
The purpose of Adjuvant! is to help health professionals and patients with early cancer discuss the risks and benefits of getting additional therapy (adjuvant therapy: usually chemotherapy, hormone therapy, or both) after surgery. The goal is to help health professionals make estimates of the risk of negative outcome (cancer related mortality or relapse) without systemic adjuvant therapy; estimates of the reduction of these risks afforded by therapy; and risks of side effects of the therapy. These estimates are based on information entered about individual patients and their tumors (i.e., patient age, tumor size, nodal involvement, histologic grade, etc.). These estimates are then provided on printed sheets in simple graphical and text formats to be used in consultations.
www.wildbleu.com
www.bluecanoe.com
These pajamas may help patients sleep more comfortably while experiencing the side-effects of treatment.
www.fda.gov/MedicalDevices/ProductsandMedicalProdedures/ImplantsandProsthetics/BreastImplants/umc064050.htm
This handbook from the Food and Drug Administration contains information to assist in making an informed decision about whether or not to have breast implants. It includes topics such as the status of breast implants, potential complications, issues to consider, timeline of FDA activities related to breast implants, and breast implant resource groups.
www.anatomical.com
800-621-7500
This company has a breast cross-section model for teaching. Request catalog online.
www.therapeuticpillows.com
888-333-3677
Shumsky Therapeutic Pillows sells unique pillows for just about every type of procedure, including non-invasive procedures. Pillows can be customized with your hospital's name and logo.
Post-Surgical Bras/Garments
Ladies First, Inc.www.ladiesfirst.com
P.O. Box 4400
Salem, OR 97302
800-497-8285
Ladies First sells breast surgery and post-mastectomy products. They are known for the SOFTEE, a camisole for patients recovering from breast surgery. View their products online or call for a catalog.
www.Jodee.com
PO Box 833837
Hollywood, FL 33020
800-821-2767
Jodee sells post-mastectomy bras and accessories. Call for a catalog.
www.bellisse.com
P.O. Box 2221
Williston, VT 05495
877-273-1683
Bellisse has a compression bra for women with chest and breast lymphedema. Call or go online to order the "Healthcare Provider Kit." This kit is free of charge and includes a sample bra and fitting instructions.
www.healingthreads.com
508-279-3900
The Original Healing Threads are an alternative to the standard patient wear, providing modesty, dignity and empowerment for patients' individual medical journeys. Garments are designed with front and back access panels, extra room for medical gear such as drains or pumps, and hospital-safe non-metal closures.
www.gentlet.com
800-989-5726
The Gentle Touch camisole was created specifically for women who have experienced a mastectomy or lumpectomy. A unique front Velcro opening allows for easy dressing and undressing. Discreetly hidden inside pockets hold temporary light breast forms as well as post-surgical drainage bulbs. Soft, comfortable cotton interlock fabric makes this the perfect garment for hospital, discharge, and home. Call or email info@gentlet.com for more information and store locations.
Complementary Medicine
American Cancer Societywww.cancer.org
Go to the ACS Web site and type "complementary alternative" in the search box. This will link you to the ACS statements on complementary and alternative therapies: ACS Statement on Complementary and Alternative Methods of Cancer Management, Guidelines for Using Complementary and Alternative Methods, and How to Know What Is Safe: Choosing and Using Dietary Supplements.
www.cancer.gov/cam
The NCI's Office of Cancer Complementary and Alternative Medicine coordinates the activities of the NCI in the area of complementary and alternative medicine. OCCAM supports CAM cancer research and provides information about cancer-related CAM to health providers and the general public.
www.nccam.nih.gov
NCCAM is dedicated to exploring complementary and alternative healing practices in the context of science; training complementary and alternative medicine (CAM) researchers; and disseminating authoritative information to the public and professionals.
www.cmbm.org
5225 Connecticut Avenue NW, Suite 414
Washington, DC 20015
202-966-7338
Every year, the Center for Mind-Body Medicine's Cancer Conference brings the complementary and alternative medical world into productive dialogue with the American cancer establishment. Recent conferences, co-sponsored by the National Cancer Institute and National Center for Complementary and Alternative Medicine, have showcased ground-breaking research for physicians and healthcare professionals.
www.oncologynutrition.org
The Oncology Nutrition Dietetic Practice Group is a dietetic practice group of the American Dietetic Association. Their mission is to provide direction and leadership for quality oncology nutrition practice through education and research. The national association currently has over 1,300 members in clinical, public health, and education.
www.altmedicine.com
This is an online newsletter that keeps you up-to-date with the latest happenings in the complementary/alternative health field.
Patient Sexuality
Astroglidewww.astroglide.com
Astroglide is an over-the-counter personal lubricant designed to relieve the discomfort of vaginal dryness, enhance the pleasure of intimate activity, and provide lubrication during non-sterile medical examinations. Go online to order free samples for your patients.
www.replens.com
Replens Long-Lasting Vaginal Moisturizer is an estrogen-free alternative that provides fast, lasting relief and freedom from vaginal dryness.
www.liquidsilk.com
Liquid Silk is a water-based, non-glycerin personal lubricant. Also available through retailers such as drugstore.com.
www.fertilehope.org
FertileHOPE is a national nonprofit organization dedicated to providing reproductive information, support, and hope to cancer patients whose medical treatments present the risk of infertility.
Patient Support Resources/Web Sites
Your Breast Cancer Treatment Handbook/EduCarewww.educareinc.com
8420 Dorchester Road, Suite 102
N. Charleston, SC 29420
843-760-6064
Designed for the Navigator/healthcare team to provide the newly diagnosed patient at the time of diagnosis. Breast Cancer Treatment Handbook has been called the most effective and empowering breast cancer book by both patients and professionals. It provides the patient with current, easy-to-understand explanations of procedures and treatments; decision making guidelines; and inspirational encouragement as the patient progresses through the breast cancer experience.
www.canceradvocacy.org
NCCS is a survivor-led organization working exclusively on behalf of the country's more than 9 million cancer survivors. The NCCS provides cancer patients with the Cancer Survival Toolbox free of charge. Available in English and Spanish.
www.patientadvocate.org
The Patient Advocate Foundation is a national nonprofit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment, and preservation of their financial stability.
www.youngsurvival.org
This organization is a network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy, and awareness, the YSC seeks to educate the medical, research, breast cancer, and legislative communities, persuading them to address breast cancer in women 40 and under.
www.lbbc.org
354 West Lancaster Avenue, Suite 224
Haverford, PA 19041
Helpline: 888-753-5222
484-708-1550
LBBC is a nonprofit educational organization committed to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs include semi-annual large scale educational conferences, a quarterly newsletter, educational teleconferencing programs, outreach to medically underserved women, and a consumer focused educational booklet.
www.breastcancer.org
This Web site is dedicated to providing patients with the most reliable, complete, and up-to-date information about breast cancer. A great site for newly diagnosed patients.
www.geocities.com/aabcainc
P.O. Box 8981
Minneapolis, MN 55408
612-825-3675
This organization provides education to African-American women on breast health, early detection, and breast cancer support groups.
www.mautnerproject.org
The National Lesbian Health Organization
202-332-5536
The Mautner Project educates lesbians about their health and trains health-care providers about their lesbian patients, providing tools and insights on how to achieve better health outcomes for lesbians.
www.networkofstrength.org
800-221-2141
Education and support for patients with a 24-hour toll-free hotline. Interpreters in more than 150 languages.
www.pregnantwithcancer.org
800-743-4471
The mission of this site is to let women know they are not alone. This network will connect a woman via phone or e-mail with another woman who has gone through a similar experience.
www.thewellnesscommunity.org
919 18th Street NW, Suite 54
Washington, DC 20006
202-659-9709
The Wellness Community is an international nonprofit organization dedicated to providing free support, education, and hope for people with cancer and their loved ones. There are currently 100 facilities worldwide. This site offers online support groups and an online newsletter for cancer patients.
www.yesIcannow.com/
Yes, I Can is a program created by Aventis Oncology for women with breast cancer. It is a Web- and mail-based program providing patients with survivor stories, diet and exercise tips, medical information, treatment organizers, and other valuable information. Patients can go online to sign up.
www.outreachofhope.org
13840 Gleneagle Drive
Colorado Springs, CO �80921
719-481-3528
Part of Dave Dravecky's ministry, patients can visit this Web site to sign up for inspirational e-mail and find encouragement.
www.carepages.com
Support and community for everyone coping with illness.
www.kidskonnected.org
27071 Cabot Road, Suite 102
Laguna Hills, CA 92653
800-899-2866
This organization is for kids who have a parent with cancer. Provide Kids Konnected with a child's name and address, and they will send the child a teddy bear with a note of support. The Web site has articles, support materials, and a chat room for children.
www.heavenlyhats.com
Attn: Anthony D. Leanna
2325 Pamperin Road, Suite D
Green Bay, WI 54313
920-434-4151 ext.1400
Heavenly Hats is a nonprofit organization which donates new hats to cancer patients.
www.livestrong.org
LIVESTRONG Survivorship Notebooks are offered free of charge from the Lance Armstrong Foundation as an easy way for cancer survivors and their caregivers to access and keep important survivorship organization organized. The portable spiral binder contains a variety of information covering a full range of physical, emotional, and practical survivorship topics. Shipping and handling charges will apply. Groups or organizations wishing to order 20 or more notebooks should fill out the bulk order request form.
www.caringbridge.org
CaringBridge is a free website where patients and caregivers can post treatment updates and photos in one location to keep loved ones informed during difficult times. In return, family and friends give patient and caregiver support through guestbook messages. So far, 150,000 families have created free personalized websites.
www.thecancercrusade.com
The Cancer Crusade is an organization dedicated to fighting cancer with hope and humor. The Cancer Crusade helps others who are facing the cancer journey by providing inspirational, educational and humorous presentations and publications, including a free online newsletter and affirmations.
Magazines/Inspirational Encouragement
MAMMwww.mamm.com
877-688-1800
MAMM is a magazine devoted to meeting the needs of women diagnosed with breast and reproductive cancer. It helps women understand more about their diagnosis, improve the quality of their life, and assess current treatments as well as new therapies on the horizon.
www.copingmag.com/cancer
615-790-2400
Coping With Cancer is America's consumer magazine for people whose lives have been touched by cancer. This magazine provides knowledge, hope, and inspiration to cancer patients, survivors, and their families.
www.curetoday.com
CURE is a magazine for cancer patients and their families, providing information on recent advancements in diagnosis, treatment, and prevention of cancer. Healthcare providers and patients can go online to sign up for a free subscription.
www.janastanfield.com
Known as "The Queen of Heavy Mental," Jana describes her music as "psychotherapy you can dance to." Her work includes the song "Butterfly."
www.griefshare.org
This website's free service sends daily emails of support and inspiration to people who have lost a loved one. When you sign someone up, they receive an email asking permission for the site to send the daily messages.
Breast Cancer Clinical Books
Lippincott Williams & Wilkins
800-638-3030
www.lww.com
ISBN 0-7817-4619-1
Understanding Breast Cancer Anatomical Chart (2006) - $9.95ISBN 1-58779-401-2
ELSEVIER
800-545-2522
www.us.elsevierhealth.com
ISBN 0-7216-9490-X
PocketRadiologist: Breast Top 100 Diagnoses (2004) - $83.95ISBN 978-0-7216-0608-8 (Pocket PC version)
ISBN 978-0-7216-0079-6 (Palm OS version)
American College of Physicians
800-523-1546 x2600
www.acponline.org
ISBN 1-930513-22-4
Thieme Medical Publishers
800-782-3488
www.thieme.com
ISBN 9781588900913
Teaching Atlas of Mammography, 3rd Edition (2001) - $159.95